Alzheimer’s spoken here.
Although not specifically for early onset dementia, this site was started by Jenny Knauss, a person diagnosed with Alzheimer’s and her husband Don Moyer, to promote a forum for educational material and advocacy opportunities for and by persons with Alzheimer’s disease and their families.
http://www.alzsh.net/

DASN International: Dementia Advocacy and Support Network.
"A worldwide organization by and for those diagnosed with dementia working together to improve our quality of life." Includes sections on: Principles, Beliefs and Values; DASN's History; Connecting with People; Finding Information; and News Headlines About Dementia.
http://www.dasninternational.org/

Physical, Speech and/or Occupational Therapy: These therapies can help Parkinson's patients control their symptoms and make daily life easier. Physical therapy may increase muscle strength and flexibility and decrease the incidence of falls. Speech therapy can increase voice volume and assist with word pronunciation. The Lee Silverman technique is a special speech therapy that can be very beneficial to people with Parkinson's - for further information see www.lsvt.org. http://www.lsvt.org/

The lack of participation by people with Parkinson's disease has resulted in some trials being unnecessarily delayed. For more information on clinical trials and how you can get involved, visit www.PDtrials.org. PDtrials is a community-wide initiative of the major Parkinson's advocacy groups whose goal is to accelerate the development of new treatments for Parkinson's. This project is led by the Parkinson's Disease Foundation, http://www.pdtrials.org/ in collaboration with the following organizations: American Parkinson Disease Association, Inc, The Michael J. Fox Foundation for Parkinson's Research, National Parkinson Foundation, Parkinson's Action Network, The Parkinson Alliance and WE MOVE.

Researching the various drug assistance programs can be a great deal of work. An organization called The Partnership for Prescription Assistance (PPRA) may be able to help navigate these systems to find the best options. PPRA brings together America's pharmaceutical companies, doctors, other health care providers, patient advocacy organizations and community groups to help qualifying patients who lack prescription coverage get the medicines they need through public or private programs. PPRA's website, www.pparx.org, provides access to more than 275 public and private patient assistance programs, including more than 150 programs offered by pharmaceutical companies. PPRA can also be contacted by calling (888) 477-2669

American Diabetes Association

American Heart Association

American Medical Association

American Society of Bariatric Physicians

American Society of Bariatric Surgery

American Society of Nephrology (ASN)

Dietary Guidelines for Americans 2005

Hypertension, Dialysis and Clinical Nephrology (HDCN)

Juvenile Diabetes Foundation

My Pyramid (Food Guide Pyramid)

National Eye Institute

National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK)

Office of the Surgeon General of the United States - Overweight and Obesity

American Cancer Society

Family Caregiver Alliance

National Association for Home Care

US Department of Health and Human Services Administration on Aging

U.S. Health & Human Services
200 Independence Avenue, SW
Washington, DC 20201
www.hhs.gov

U.S. Administration on Aging
Washington, DC 20201
http://www.aoa.dhhs.gov/

Department of Health & Human Services

Medicare.gov

Firstgov.gov

MyAdvocate Health Library

Adult Healthcare Articles;

Cancer

American Cancer Society
The American Cancer Society website contains a good collection of information for local and national units, the history of the society and the latest information about their efforts in combating cancer.

American Foundation for Urologic Disease
Dedicated to the prevention and cure of urologic diseases (prostate, bladder, kidney) through the expansion of medical research, education, and awareness. Advocates patient issues through the Prostate Cancer Support Network, Bladder Health Council, Kidney Health Council, Prostate Health Council, Sexual Function Health Council, and Prostate Cancer Support Network.
1-410-727-2908
admin@afud.org

American Institute for Cancer Research
Focuses exclusively on the link betwen diet,nutrition, and cancer through supporting research and consumer education
1-800-843-8144 (Nutrition Hotline)

Cancerdirectory
"...a unique Web resource designed to assist people who have been recently diagnosed or are presently coping with cancer."

CancerGuide
Steve Dunn - Cancer-List member

CancerNet
Global resource listings of national and local patient advocacy groups; PDQ database for protocol information.
cancernet@icicc.nci.nih.gov

Cancer Research Institute
Supports leading-edge research aimed at developing new methods of diagnosing, treating, and preventing cancer.
1-800-99-CANCER

Cancer News on the Net
"An internet publication for cancer patients and their families. We have links to most of the major cancer resources on the Net. In addition, we feature articles on various forms of cancer."

Corporate Angel Network
Helps cancer patients in stable conditon find free flights to and from recognized cancer treatment centers, using empty seats on corporate aircraft flying on normal business.
1-914-328-1313
corpangl@ix.netcom.com

International Myeloma Foundation
Promotes education for physicians and patients about myeloma, its treatment and management. Funds research, holds clinical and scientific conferences. Publishes a quarterly newsletter, Myeloma Today.
1-800-452-CURE
TheIMF@aol.com

Medical Breakthroughs
Reported by Ivanhoe News, Inc.

National Coalition for Cancer Survivorship
Raises awareness of cancer survivorship through publications, quarterly newletter, education , and advocacy for insurance, employment, and legal rights for people with cancer.
1-888-650-9127 (toll free)

National Institutes of Health

National Patient Air Transport Hotline
Makes referrals to all known charitable, charitably assisted and special discounted patient medical air transport services based on an evaluation of patient's needs.
1-800-296-1217
npathmsg@aol.com

OncoLink
Resource for all cancer information

US TOO
Provides prostate cancer survivors with emotional and educational support through a network of support groups and quarterly newsletter.
Hotline 1-800-808-7866
1-630-323-1002
ustoo@ustoo.com

Yahoo - Health, Medicine

Y-Me
Hotline counseling, educational programs, and self-help meetings. Also provides a Y-Me Men's Support Line.
1-800-221-2141 (24 hour)
1-800-986-9505 (Spanish)

Candlelighters Childhood Cancer Foundation
Provides information, support, and advocacy to familites of children with cancer and professionals who work with them.
1-800-366-2223

CHEMOcare
Offers one-to-one emotional support to cancer patients and their families undergoing chemotherapyand/or rediation treatment from trained and certified volunteers who have survived the treatments themselves.
1-800-55-CHEMO

Families Against Cancer (FACT)
Advocate for the cancer patient and public and a support and referral agency. It promotes greater national commitment to overcome cancer.
1-315-446-5326 or 1-315-446-6385

Friends Network
Offers the only national colon cancer activities newletter - The Funletter, designed for kids fighting cancer.
Friends Network
c/o Kenon Neal
P.O. Box 4545
Santa Barbara, CA 93140

Make Today Count
A mutual support organization that brings together persons affected by a life-threatening illness so they may help each other.
1-800-432-2273

Mathews Foundaton for Prostate Cancer Research
Prostate cancer survivors and their families can obtain individual answers to their questons about the disease, its treatment, and symptoms.
1-800-234-6284
mathews@sna.com

National Kidney Cancer Association
Works to increase the survival of kidney cancer patients and improve their care by providing information, sponsoring research, and acting as an advocate on behalf of patients.
1-847-332-1051
nkca@net100.com

Patient Advocates for Advanced Cancer Treatments
An association for both patients and physicians for diagnostic and therapeutic treatments of prostate cancer.
1-616-453-1477

R.A. Bloch Cancer Foundation, Inc.
Provides a cancer hotline that matches newly diagnosed cancer patients with someone who has survived their same kind of cancer. Offers free information, resources, books, and support groups.
1-816-932-8453

Ronald McDonald House
Offers a refuge from the hospital, a "home-away-from-home".
1-630-623-7048

The Skin Cancer Foundation
Provides educational materials including brochures, videos, quarterly newsletters, publications, and CD-ROM on melanoma. Conducts seminars and medical education on skin cancer.
1-800-SKIN-490

Support for People with Oral and Head and Neck Cancer, Inc.
A self-help program of support for emotional, psychological, and humanistic needs related to head and neck cancer.
1-516-759-5333
spohnc@ix.netcom.com

United Ostomy Association, Inc.
1-800-826-0826
or 1-714-660-8624

American Heart Association

The American Heart Association is a not-for-profit, voluntary health organization funded by private funds. Its mission is to reduce disability and death from cardiovascular diseases and stroke. These include heart attack, stroke and related disorders. The website provides information about affiliates, research and more.

Heart Information Network

HeartInfo is an independent, educational Web site that provides a wide range of information and services to heart patients and others interested in learning about lowering risk factors for heart disease. Founded by a heart patient and a physician who is a world renowned expert on heart disease, the site is dedicated to empowering individuals and fostering a dialogue between individuals and their physicians. It is designed to be used as a resource by all people, regardless of their medical background.

The Heart: An Online Exploration

Explore the heart. Discover the complexities of its development and structure. Follow the blood through the blood vessels. Wander through the weblike body systems. Learn how to have a healthy heart and how to monitor your heart's health. Look back at the history of heart science.

implantable.com

Pacemaker and defibrillator site index.

Advocate's Heart Care Index

American Cancer Society Guidelines for the Early Detection of Cancer